Genome BC presented Sharon Terry as the 2017 Don Rix Distinguished Keynote speaker. On Thursday, October 19th she delivered a compelling keynote: “If you are not at the table, you are on the menu: participatory science in health.”
A fascinating story of how this citizen scientist took the medical research community by storm when she forged a path to address the rare genetic condition that affects her children. Sharon Terry’s took the audience through her lifelong quest to transform systems that would accelerate treatments for her children’s disease, as well as many others. Today, Sharon Terry is at the forefront of consumer participation in genetics research, services and policy and leads the Genetic Alliance in providing programs, products and tools for ordinary people to take charge of their health.
Terry described the impact genomics has on society and the growing influence of public engagement reminding us to look outside the traditional research box and get involved in the process! A Q&A session with the audience and a reception with light refreshments followed the talk.